Use these Frequently Asked Questions (FAQs) to see if you can find the answer to your question.
If you can't see an answer here, please contact us.
The MS Register is a ground-breaking study designed to increase our understanding of living with MS in the UK.By regularly returning to complete a series of questionnaires you will be directly involved in generating new research. The online survey is a collaboration between the UK MS Society and Swansea University, where a team of experts are working to collate and analyse data. For more information please contact us.
There are around seven regular questionnaires that we ask you to complete every six months. The rest of the information we collect remains open so you can update it as things change. We will ask you to check it once a year. You can do this by clicking on the highlighted relevant sections in the ‘Me at a Glance’ section.We also host guest questionnaires from other researchers/organisations – we will let you know what these are about and when they are available.
Each of the questionnaires is based on a standardised questionnaire or ‘Validated Research Instrument’ that is used in many other studies to assess different study groups. We keep to the standardised research instruments so that we can compare the results from the Register Website to other studies and benchmarks.
The feedback page will have charts to show how your questionnaire answers have changed over time. You can also download your results as a PDF to see and print off to show your doctor if you wish.
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