Publications

Our Research


  1. Balbuena LD, Middleton RM, Tuite-Dalton K, Pouliou T, Williams KE, Noble GJ. Sunshine, Sea, and Season of Birth: MS Incidence in Wales. Burne THJ, editor. PLOS ONE. 2016 May 16;11(5):e0155181. http://dx.plos.org/10.1371/journal.pone.0155181
  2. Ford DV, Jones KH, Middleton RM, Lockhart-Jones H, Maramba ID, Noble GJ, et al. The feasibility of collecting information from people with Multiple Sclerosis for the UK MS Register via a web portal: characterising a cohort of people with MS. BMC Medical Informatics and Decision Making. 2012;12(1):73. http://www.biomedcentral.com/1472-6947/12/73
  3. Jones KH, Ford DV, Jones PA, John A, Middleton RM, Lockhart-Jones H, et al. A Large-Scale Study of Anxiety and Depression in People with Multiple Sclerosis: A Survey via the Web Portal of the UK MS Register. Reindl M, editor. PLoS ONE. 2012 Jul 30;7(7):e41910. http://dx.plos.org/10.1371/journal.pone.0041910
  4. Jones KH, Ford DV, Jones PA, John A, Middleton RM, Lockhart-Jones H, et al. The Physical and Psychological Impact of Multiple Sclerosis Using the MSIS-29 via the Web Portal of the UK MS Register. Reindl M, editor. PLoS ONE. 2013 Jan 31;8(1):e55422. https://doi.org/10.1371/journal.pone.0055422
  5. Jones KH, Ford DV, Jones PA, John A, Middleton RM, Lockhart-Jones H, et al. How People with Multiple Sclerosis Rate Their Quality of Life: An EQ-5D Survey via the UK MS Register. Reindl M, editor. PLoS ONE. 2013 Jun 11;8(6):e65640. http://dx.plos.org/10.1371/journal.pone.0055422
  6. Jones KH, Jones PA, Middleton RM, Ford DV, Tuite-Dalton K, Lockhart-Jones H, et al. Physical Disability, Anxiety and Depression in People with MS: An Internet-Based Survey via the UK MS Register. Reindl M, editor. PLoS ONE. 2014 Aug 25;9(8):e104604. http://dx.plos.org/10.1371/journal.pone.0104604
  7. Middleton R, Rodgers W, Chataway J, Schmierer K, Rog D, Galea I, et al. Validating the Portal Population of the United Kingdom Multiple Sclerosis Register. Multiple Sclerosis and Related Disorders [Internet]. 2018 May [cited 2018 May 25]; Available from: http://linkinghub.elsevier.com/retrieve/pii/S2211034818301767
  8. Noble JG, Osborne LA, Jones KH, Middleton RM, Ford DV. Commentary on ‘disability outcome measures in multiple sclerosis clinical trials’. Mult Scler. 2012 Dec;18(12):1718–20. https://doi.org/10.1177/1352458512457847
  9. Osborne LA, Gareth Noble J, Maramba IDC, Jones KH, Middleton RM, Lyons RA, et al. Outcome measures for multiple sclerosis. Physical Therapy Reviews. 2014 Feb;19(1):24–38. http://www.tandfonline.com/doi/full/10.1179/1743288X13Y.0000000094
  10. Osborne LA, Lockhart-Jones HM, Middleton RM, Thompson S, Maramba IDC, Jones KH, et al. Identifying and Addressing the Barriers to the Use of an Internet-Register for Multiple Sclerosis: International Journal of Healthcare Information Systems and Informatics. 2013;8(1):1–16. http://services.igi-global.com/resolvedoi/resolve.aspx?doi=10.4018/jhisi.2013010101
  11. Osborne LA, Middleton RM, Jones KH, Ford DV, Noble JG. Desirability and expectations of the UK MS Register: Views of people with MS. International Journal of Medical Informatics. 2013 Nov;82(11):1104–10. http://linkinghub.elsevier.com/retrieve/pii/S1386505613001603
  12. Osborne LA, Noble JG, Lockhart-Jones HM, Middleton R, Thompson S, Maramba IDC, et al. Sources of Discovery, Reasons for Registration, and Expectations of an Internet-Based Register for Multiple Sclerosis: Visualisations and Explorations of Word Uses and Contexts. International Journal of Healthcare Information Systems and Informatics. 2012 33;7(3):27–43. http://services.igi-global.com/resolvedoi/resolve.aspx?doi=10.4018/jhisi.2012070103
  13. Lacey A, Lyons J, Akbari A, Turner SL, Walters AM, Fonferko-Shadrach B, et al. Codifying unstructured data: A Natural Language Processing approach to extract rich data from clinical letters. International Journal for Population Data Science [Internet]. 2017 Apr 19 [cited 2017 Apr 26];1(1). Available from: https://ijpds.org/article/view/354
  14. Middleton R, Akbari A, Lockhart-Jones H, Jones J, Owen C, Hughes S, et al. Clinical Validation of the UKMS Register Minimal Dataset utilising Natural Language Processing. International Journal for Population Data Science [Internet]. 2017 Apr 18 [cited 2017 Apr 26];1(1). Available from: https://ijpds.org/article/view/288
  15. Middleton R, Ford D, Naeh D. iConsent an Electronic Consent Platform with the MS Register. International Journal for Population Data Science [Internet]. 2017 Apr 19 [cited 2017 Apr 26];1(1). Available from: https://ijpds.org/article/view/363

Collaborators' Research


  1. Baker D, Anandhakrishnan A, Tuite-Dalton KA, Lockart–Jones H, Middleton RM, Ford DV, et al. How to refer to people with disease in research outputs: The disconnection between academic practise and that preferred by people with multiple sclerosis. Multiple Sclerosis and Related Disorders. 2016 Nov;10:127–33. http://linkinghub.elsevier.com/retrieve/pii/S2211034816301705
  2. Campbell E, Coulter E, Mattison P, McFadyen A, Miller L, Paul L. Access, delivery and perceived efficacy of physiotherapy and use of complementary and alternative therapies by people with progressive multiple sclerosis in the United Kingdom: An online survey. Multiple Sclerosis and Related Disorders [Internet]. 2017 Jan [cited 2017 Jan 18]; Available from: http://linkinghub.elsevier.com/retrieve/pii/S2211034817300032
  3. Dennison L, Brown M, Kirby S, Galea I. Do people with multiple sclerosis want to know their prognosis? A UK nationwide study. Young B, editor. PLOS ONE. 2018 Feb 28;13(2):e0193407. http://dx.plos.org/10.1371/journal.pone.0193407
  4. Flachenecker P, Buckow K, Pugliatti M, Kes VB, Battaglia MA, Boyko A, et al. Multiple sclerosis registries in Europe - results of a systematic survey. Multiple Sclerosis Journal. 2014 Oct 1;20(11):1523–32. http://journals.sagepub.com/doi/pdf/10.1177/1352458514528760
  5. Goodwin E, Green C, Hawton A. Health State Values Derived from People with Multiple Sclerosis for a Condition-Specific Preference-Based Measure: Multiple Sclerosis Impact Scale–Eight Dimensions–Patient Version (MSIS-8D-P). Value in Health [Internet]. 2018 Jun [cited 2018 Sep 10]; Available from: https://linkinghub.elsevier.com/retrieve/pii/S1098301518316784

To read about the research that has been done on the UK MS Register in more layman’s terms, have a look at the MS Register news pages!