This substudy has been set up in collaboration with a group of Neurologists and other professionals.
A secure, anonymised electronic Case Report Form (eCRF) has been created in response to the global COVID-19 coronavirus pandemic. It is intended for healthcare professionals caring for patients with MS to report confirmed coronavirus (COVID-19) infection in patients with MS.
Please use this eCRF to report any confirmed COVID19 infections in patients with MS -COVID-19 CRF:COVID-19 eCRF
If the link above does not work, try copying the link below into your web browser:
You can download a paper form here. We understand that in these busy times staff may not be able to get to a computer to complete the eCRF.Download COVID-19 CRF
Please post or email the CRF to the UK MS Register:
UK MS Register
Data Science Building
Swansea University Medical School
Swansea, SA2 8PP
We hope that this study will aid MS clinicians and researchers in better understanding the effect of COVID-19 on patients with MS.
The survey results will be shared securely on request, to any clinician contributing data and summary data will be available every two weeks to the MS community.
Follow up data may be required by the MS Register Team seeking further (minimal) outcomes. Your contact details will not be used for any other reason and will not be passed on to any other parties, except members of the UK MS Register team and the COVID-19 sub-study group members.
The data will be held securely by the UK MS Register at Swansea University - Click here for gorvernance and management information.
Please email email@example.com if you have any questions.
For those that are partner sites, there is a form available on your Redcap eCRF so that you can upload any Coronavirus cases in consented patients.
The survey complements the longitudinal patients reporting of viral symptoms and COVID infections based at the UK MS Register. Please direct your patients to https://ukmsregister.org to answer PROMs.
Prof Richard Nicholas
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Dr Owen Pearson
Dr Martin Duddy
Dr Ruth Dobson
Dr Linda Middleton
Dr Afagh Garjani
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Dr David Rog
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Dr Emma Tallantyre